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Issue V Leiden


Image by Mrs. Jenny Ryan
So I was not too long ago diagnosed with Factor V Leiden (heterozygous). FVL is a genetic blood disorder that increases the likelihood of my building abnormal blood clots (DVT or Deep Vein Thrombosis). This can lead to clots traveling by way of the bloodstream to the lungs, causing a pulmonary embolism. It is also linked with improved chance of miscarriage and stillbirth (which is what occurred to me on October 15). There is a lot more thorough info here.

Though roughly five% of the Caucasian population has FVL, this mutation was only discovered in 1993 so there is a frustrating lack of details out there and most folks who have the disorder don’t even know it. They might not know it till they have numerous pregnancy losses and are lastly tested for it, considering that miscarriages are treated as a regular and typical portion of life till you have numerous (aren’t ladies lucky?). With second &amp third trimester losses getting much less frequent, one is typically tested sooner (like I was given that I was almost six months pregnant). However, numerous folks with FVL have totally normal pregnancies. You just never know. Also frustrating is that testing optimistic can make it challenging to get health and life insurance.

Other issues with FVL: Flying can be problematic, same with lengthy automobile trips. Estrogen is a no-no and I can’t take birth control pills.

Apparently the weeks following giving birth are specifically risky for people with FVL, so medical doctors typically advocate injecting a blood thinner for six weeks or so. These (crappy mobile phone) pix show my torso and the a lot of bruises and blood blisters the injection marks leave. It looks worse in particular person. I have 4 far more weeks of twice-every day injections to go just before I can cease. I’ve in no way had any blood clots or signs and symptoms until the stillbirth (which they feel is attributable to the FVL considering that the postmortem showed that the placenta was 30% clotted), so taking the blood thinners is mostly a precautionary measure. I truly do not like performing the injections, but when I think about diabetics and other folks who have to inject drugs for their entire lives, I feel like a total whiner so I just buck up and do it.

&quotBuck up and do it&quot is my attitude 24/7 these days. Retaining my circulation great is super crucial with FVL (and losing weight is a ought to to help lower my clotting danger) so I’ve been rising my exercising (I’m now working out at least 35 mins each day) and eating as healthily as I can. Obtaining my health on the line (and the health of a possible long term infant, given that we want to attempt once more) has made my attempts at acquiring in shape considerably various than just before. I’ve lost eight lbs in the final 3 weeks and I can only hope my challenging operate will carry on to spend off…

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